Typical day for Remy is dependent on his blood sugar the night before. We try very hard to have a schedule as it makes diabetes easier, but here is a perfect example of how tricky it can be with diabetes and extreme food allergies. Every day is different.
We picked apples from the orchard. These apples have never been sprayed. Remy had a few slices and the apples were tart so it had a negligible effect on his blood sugar. However about 30 min later Remy starts hiccuping. Hiccups seem like no big deal, but for Remy hiccups is a sign he's allergic to the food he has eaten. With hiccups comes extreme abdominal pain and reflux. Later comes the diarrhea. Remy has eaten apples before so this time around I chalked the hiccups up to just "normal" hiccups. We decided we would make applesauce with the apples to use for blood sugar lows. Remy had a great time using the apple peeling/coring tool. We boiled the apples and added cinnamon and no extra sugar and we put it in jars and froze. Remy was running a tad low and wanted to try the applesauce so he had a tiny bowl. 30 minutes later hiccups and then pain. Remy said mommy I'm allergic to the apples and I can't have the applesauce. He was so sad. He is choosing to not eat it because of the pain and hiccups.
This also sends his blood sugar haywire because his body is having an inflammatory response- it's not immediate. We see the response at night normally after 12 amand until about 5 am. During that time I'm dosing his insulin and watching him. If his sugar is very high his sleep is restless. This is what happened last night. He ran high. As a result I upped his basal dose by .5 because he will run higher for a few days after a reaction. This increase was too much for him...and the measurements on the syringes only come in .5 increments. So tonight after playing in the mud- Remy goes low...see below after description of typical day.
So a typical day:
When Remy wakes I test his blood sugar first thing and usually give him a shot to stop the rise in his sugar when he gets up. Remy woke at 7 but had to wait until 8 am to eat because his sugar was too high to eat . Remy didn't mind because we played and so that kept him preoccupied. Breakfast includes 2 shots- long acting insulin (background) and short acting to cover his immediate meal. He also takes 1 prescription med. He takes his supplements.
After breakfast we will do some more playing( building, cars, hide and seek- construction stuff) walk Roxie, collect eggs, feed chickens, or garden or all of the above.
Lunch between 12-2 dependent on when breakfast was and blood sugar. Meaning may need to wait to eat if high or eat sooner if trending low. Another sugar test and another shot. One prescription med and supplements.
More playing, reading some quiet time- Remy refuses to nap. Play with Roxie. Scent train with Roxie.
Bath or shower or foot bath.
Remy normally helps prepare his dinner- chopping veggies or mixing/stirring.
Dinner between 6-8 also dependent on when lunch was and blood sugar. That's another shot 2 shots ( long and short acting) and blood sugar check. 2 prescription meds and supplements.
Sometimes he doesn't want to take his pills and his night prescription is a liquid and he doesn't like the taste- and we can't hide in juice because he's diabetic. So he gets angry.
Dependent on activity during the day and if I guessed his insulin correctly or incorrectly- Remy could have upwards of 10 shots per day and 12-15 blood sugar checks even with wearing a continuous glucose monitor. If Remy goes low that's normally 3 blood sugar checks within 45 min.
Last night after having so much fun in the garden playing in mud and getting tired Remy was ready for bed at 7:30. His sugar was 110. He had a big dinner and even egg custard for dessert (sweetened only with stevia so barely any carbs). Unfortunately all the mud playing and exhaustion caught up with him and he still had insulin on board from dinner. So as soon as Remy fell asleep his sugar dropped. I watched his monitor go from 109 to 97 and then to 84. I check him and he's really 50. I tapped his chin with a spoonful of honey and he opens his mouth like a baby bird and goes back to sleep. I check his sugar 15 min later and he's 97. I watch the monitor again as there is a 15 min lag- the monitor is measuring interstitial fluid and not blood sugar so it's slower to raise after testing a low. The monitor catches up...then I see it drop 5 points. It says he's 90. I check him again and he's 54. This is 30 min after getting honey. I double check his sugar- another poke. He's really 54. Now I'm worried because it's 2 drops really quickly with enough honey to send his sugar soaring. I give him more honey and wait 15 min and check. He's 60 15 min later after another poke. So I mix dextrose (corn) in water and wake him up and have him drink the dextrose water. 15 min later he's 80-another poke. I wake him again to get him to drink kefir so he can maintain his blood sugar- so from 9:30 pm to 2:30 am his sugar is between 120-110. 2:30 am his sugar starts dropping. I'm awake and watching to see if he will stabilize or keep going down. He keeps going down. I give him dextrose at 74 - toe poke- because it's a steady drop in the middle of the night and honey is very slow when he's tired and late at night. He has 3 carbs worth which is way too much- should raise him over 150. His sugar goes to 76 -toe poke- and then drops back down to 68- toe poke. Wake Remy up again to sit up and drink more dextrose. It's 3:45 8 toe pokes between 7:30 and 3:45. I'm waiting for his sugar to rise and then more kefir to hold him steady until the morning hopefully. So this morning when Remy wakes up- he might not feel well because i chose to give him dextrose to get his sugar to rise more quickly because he was too low. Too frequently. This means we will have rebound highs from dextrose and inflammation from having corn in his system, but that's those choice I made to avoid waking him up more and avoid a seizure or worse. So today will be spent trying to negate the effects of the corn with charcoal and a foot bath and vitamins and lots of water to help his body flush the toxins.
It's 4 am. His monitor reads 62. Another poke he's only 70 with 6 carbs in the last 30 min- this means most likely I'll see a delayed spike...and his sugar will go high. Sometimes it takes a long time for the dextrose to even work- so if I wasn't aggressive and hadn't treated him with dextrose he would be riding in the 50s or less if I had chosen honey.
I went to bed around 9:30 and I've woken up every hour to look at his monitor. I've stayed awake since 2:30 waiting for his sugar to stabilize. I'll be up for another 30 min to make sure he's stable before I go back to sleep. I expect Remy to wake around 7.
It's 4:15 and his sugar is rising...looks like I've given too much dextrose so...I may have to give him a shot. I have to wait and watch and see where his sugar goes- probably 30 more min before I can decide if I need to give him a shot.
What can't Remy do:
- Play sports without cardiologist clearance
- Tolerate heat
- Eat out or eat processed food without a reaction- pain, diarrhea, reflux, disrupted sleep.
- Eat most things at grocery stores
- Participate in class sponsored snacks
- Swim in a swimming pool or go to water parks- chlorine allergy.
- Eat most frozen food
- Run without having irregular heart beats
- Wear an insulin pump- allergy
- Eat without knowing his sugar and taking insulin
- Sleep through the night due diabetes or pain from food allergies
- Be in moldy buildings
- Be outside of a 10 ft radius of his monitor and someone watching it
- Be around people who are sick
- go into stores or buildings unless pre medicated for allergies
How you can help Remy:
- Send checks to:
- Rescue Remy PO BOX 2444 Easton Maryland 21601
- Send cash transfers through: You Caring; Paypal; Money Gram
- For further information or inquiry, email or use form below:
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